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Showing posts with label infant loss. Show all posts
Showing posts with label infant loss. Show all posts

They're here!

Monday, March 14, 2016


It's been a week!
What a week it has been.


I certainly didn't expect to goto my (32 week
appointment and then be told we are delivering TODAY!


I was sad and glad. Sad that I couldn't not get them further, but GLAD they would be soon be out and in my arms safe... I was starting to have anxiety everyday that something was going to happen.
We made it.  



WAITING...


Scrubbing in
Here comes Daddy!


More waiting...
Here we go... Major panic behind the smile.
Everyone was excited!  



And... they're coming... 


Hard work having 3 babies. I need a nap.



HAPPY BIRTHDAY!



Today they are one week old and are doing SO well.   They will be in the NICU for at least 3-4 weeks, they are all "Feeders/Growers", off oxygen, IVs and only having feeding tubes. They start to bottle feed this week. Another answered prayer, they are moving right along for being born early.



We are so impressed and PROUD. 


 Asher born at 6:01 PM  3lbs. 10oz

Aspen born at 6:02 PM  3lbs. 14oz



Cross at 6:02 PM.  2lbs. 15oz



Thanks for being apart of our journey. 
God is SO good.
Holding them is surreal
We have been abundantly blessed.








A Triple Blessing

Monday, January 18, 2016


It's time we announce the great gift we've been given, the beauty that came from such a dark time, another miracle set of triplets. The first time was shock, the second time... 
We knew there was a Divine plan


Boy, Boy, Girl. 
Yes, Just like Jax, Stella and Beck. 


Their due date is one year to the date after we lost Jax, Stella and Beck.
May 2nd, 2015 (Birthday)
May 2nd, 2016 (40 week due date)


No we didn't plan this, he did.
No we didn't expect this, he already knew.
Yes we were shocked. 
We were scared. Still are.
But we know the anxieties are only taken away by one person and he has created a plan so much better than we could have even imagine. 


We miss Jax, Stella and Beck.
We ache with every thought, "they should be here". Always our first, always the first grandchildren for my parents, always the first granddaughter for Jordan's. There should be 3 more children running around. But how can something so miraculous happen, and you not believe they had something to do with this. They are not gone- they are very much alive. 


We believe God has the perfect plan to fill your broken heart with 
just the right amount of healing. 
We don't understand his plan, but are so grateful for his unlimited blessings. 









"Rainbow Babies" is the understanding that the beauty of a rainbow does not negate the ravages of the storm. When a rainbow appears, it doesn't mean the storm never happened or that the family is not still dealing with its aftermath. What it means is that something beautiful and full of light has appeared in the midst of the darkness and clouds. Storm clouds may still hover but the rainbow provides a counterbalance of color, energy and hope."  
A triple Rainbow.







They were not a storm or "a loss", it was their absence that put a dark cloud over our lives. The constant ache of a hole that will never close. 

Jax, Stella and Beck will remain in our family forever. They will be recognized, and treated as if they are here with us, just gone from sight. We will always expect nothing less for their lives. They have been an incredible blessing and continue to teach us and bless us.
 I'll never be able to hold Jax, Stella and Beck again, but I know they are in the safest arms. On earth I will be able to hold three more little loves for as long as I am given with them. 







Most days it doesn't seem real, to good to be true,
 but we hold to faith they WILL be joining us in March!
We are so appreciative of your thoughts, prayers, positivity and support over the past year.
The love and blessings we've received are truly priceless. 

Over the weekend we were showered in love by our church. 
They have become family and a KEY piece to our healing.


It was even more beautiful that we included Jax, Stella and Beck.

We hope that you will pray with us over the next few months that they stay safely inside, continue to grow and thrive and that I have a smooth c-section with a quick recovery.





Medically Necessary, not experimental!

Wednesday, August 12, 2015





Some people probably think I'm crazy, or worse, 
for being this open.


but I KNOW I am being helpful.
I will not apologize or be ashamed.

I would not be where I am right now without the help, research and knowledge of other woman who have been exactly where I am now. Their testimonies, their loses and their happiness after the darkest time in their life; reading their experiences gave me hope. When you've lost everything,
Hope is the ONLY thing you have to hold on to.




I announce the news of my surgery being covered by my insurance!
All my hospital visits, procedures, and their birth have led me to meet my deductibles and out-of-pockets for the year. (strange to be happy about that...)

They have approved this procedure as medically necessary, not experimental! 
Thank you LORD. 
We would have paid it without hesitation, regardless, but what a blessing to have one less burden on our plate.

Let me say that God broke me down and is slowly building me back up. That is what it felt like when I found out what a Trans-abdominal Cerclage was. The tears, the anger, devastation overwhelmed me. Why couldn't I know then what I know now... 
WHY CAN'T I HAVE A SECOND CHANCE.

I'm taking this as my second chance. 

It's all very bitter-sweet, I say this as tears well up in my eyes.
It's tears of happiness and sadness.


Thank you for the prayers and encouragements. 
If I haven't thanked you personally 
-PLEASE-
know that your actions are seen and heard and felt.
You are all an important part of my story.



MY SURGERY IS SET FOR WED, AUG 26TH.





Be your own hero...

Thursday, August 6, 2015


Should be my new motto.

If words like cervix, transvaginal, uterus bother you- turn back now!

Who knew this journey would have so many medical terms and obstacles along the way...
This post is to educate and explain your options if you are a woman who may be in the same situation. 

Incompetent Cerivx, IC, weak cervix  etc... this is something that does not get enough exposure but nearly 1 in 100 pregnancies are lost each year due to some sort of IC. It's not commonly tested for, and I only know if this because I had a dear friend who lost a baby girl 3 years ago and if it happened to her, why couldn’t it happen to me? This was always in the forefront of my mind and that is what caused me to really monitor my body and say something when I did.

"Incompetent cervix is not routinely checked for during pregnancy and therefore is not usually diagnosed until after a second or third trimester miscarriage has occurred. Women can be evaluated before pregnancy, or in early pregnancy by ultrasound, if they have any of the factors that are potential causes of incompetent cervix. Diagnosis can be made by your physician though a pelvic exam or by an ultrasound. The ultrasound would be used to measure the cervical opening or the length of the cervix."
Because of there is lack of proactivity, woman have to suffer loss after loss before a solution is put in place.
THIS IS A PROBLEM.


Some Doctors encourage you to "just wait and see"
How many women would be ok with, "Lets wait and see if your body will hold your baby, or if it will go into labor too early to save your child"



If you're reading this chances are you have heard our story. 
According to the many conversations I've had with Drs I had preterm labor secondary to Incompetent cervix with Jax, Stella and Beck that ultimately sent me into preterm labor. My body was unable to hold the growing bodies of my babies, I started to dilate and thankfully I followed my instincts had my Dr check everything at 16 weeks. 
I saw the worry on his face and he sent me straight to the hospital where he preform an emergency cerclage(TVC) with only 1.5mm of cervix remaining to work with. (That's not a lot. At.all.)
By the time we realized all that was happening it was really too late... but we did all that we could do at that time. 

I can't begin to tell you how long those 2 hours felt, the fear, panic. 
I was sewn closed. 
He said I was my own hero that day. 
I stayed in the hospital a few days while they pumped me full of antibiotics and 
monitored how it was holding.

2 weeks later I funneled down to the stitch Jax's head was down, 
 "knocking at heavens doors". 
(I'm allowed some dark humor) 

This is worst case scenario at only 19 weeks. 
This is why multiples are so rare and so high risk.
Through everything I've researched and women I've talked to ...You can almost guarantee your going to have cervical complications carrying multiples. Preterm delivery is extremely common, your body thinks your further along than you are... but I had a few things working against me. 

All of this worth every second I had with them. They lit a fire in me and I'm determined to do everything I can to change the outcome for their siblings.

     I'd like to ask for prayers.
Prayers for a clear mind while we make a decision that can alter our family's future forever.

 we face a difficult, but life changing decision. 


We can use the TVC (transvaginal cerclage) -again- (technically)I don't think it failed me, but  I truly dd not have it long enough to find out and with a TVC you are on bed rest. However with a TAC (transadominal cerclage) they are placed much higher and it's *almost* impossible to funnel past the band or rupture membranes. This virtually guarantees I will make it full term, although anything can happen. 


I feel like I have no control over anything, but this is something I can do.

It's like a broken record in my head 'Could I have done more'...but now armed with knowledge, I can do more. They did not die in vain and I will do everything I can for them even though they are gone.

I need guidance on which to go with,
I've survived I'm surviving the loss of my first 3 babies- I can not do it again whether 1 2 or 3 again. 

Here is why the decision is more complicated than it seems- the TAC (transadominal) is a surgery. They cut you open like a csection, go around abdominal muscles and place the band at the highest point of your cervix. Once it is placed it's permanent. &You must have a c-section delivery. 
All terrifying for many reason.
But the possibility of losing another child is unbearable.

Did I mention there's only about 10 surgeons in the US that preform this procedure... leading surgeons are- #1 Dr.Haney in Chicago, #2 Dr. Davis in Tennessee. Neither are close to me. I could follow the trend- travel to Chicago and have the best surgeon place, but I located 2 highly recommended Drs in DFW. I meet with one tomorrow and the other Monday Aug. 17th.
I spoke directly with Dr. Haney and he is confident the TAC is the way to go, yes there are risk, there are always risk, but I am weighing my options.

 This decision is life changing and ultimately child saving. 


TVC is less invasion and successful around 80% of the time. They are removable and you can deliver naturally. This is what I had placed, and it held, but I funneled which is a concern- as the baby grows it presses on that stitch and it can possibly rip causing damage, or you may funnel past the stitch a that will cause premature rupture of membranes and preterm birth.

I hope if you are reading this you realize you have options. 
Trust your doctors, but ultimately you have to be willing to save yourself
Fight for what you want and search until you've found someone that will support you.

I have no idea what I plan to do at this point. I'm praying for clarity and comfort. I've had a lot of anxiety over this decision ever since I found out I have choices. When you read the facts- it's a pretty clear choice, TAC.

When Jax Stella and Beck were born so much blood was lost no one thought I would survive... facing a c-section scares me, and possible complications from the TAC and recovery, and so on. 


Our journey isn't easy, but it will be worth it.
Jax Stella and Beck's lives were not in vain they will save all their future siblings.
I only wish I could ave saved them. I promise I will not let them down. 


I plan on sharing this journey as well...
My procedure my recovery... and I hope beautiful things come from this.

All because of Jax Stella and Beck. They lit a fire in me no one can put out. 






3 Months

Sunday, August 2, 2015



"Everybody has a chapter they don't read aloud. If you get to read that chapter in someone else's story, know that access to it is an honor. 
Sometimes the quiet parts carry the most treasure"



I never thought I would be so transparent. Believe it or not I'm actually quite a private person with anything personal, yes I'll always speak my opinions and beliefs but with personal matters I either hold it to myself or disclose to close friends and family. 

I'm happy Proud to share this Journey, it's really just about them. Not about me. I'm along for this ride. It's about me speaking their names, celebrating them, creating things for them, loving them.
I will never stop speaking their names. 

3 months ago,

I swaddled them up and said goodbye to their cold bodies, placed them in their baby casket. We snapped a few more photos, the only photos we would have of them. Forever frozen in time never to grow, never to walk. Beautiful little bodies photographed. Our most treasured possessions. 

We closed the lid and took them home. They didn't ride in a car seat, they rode in their baby casket in the back of our suburban we bought for them. This huge SUV is empty without them, 3 empty seats where their car seats should be. 

We brought them inside and sat the casket on our bed. I should have laid with them.
I wish I would have curled up next to their casket and just held it and them

I feel so close to them today. 
I want to reach out and pick them up again and I remember they are in the ground, across the yard, buried under a tree. 

It sickens me.
I don't want to believe it's been 3 months.
This month has been especially hard on me. As their due date approaches I find myself in a ball of emotions.

Confused...

Everything leads up to this one day.

For most people it will be here and gone, just another day. For me it will be finite.


Next month will be the most difficult, I am sure of this.


Once again I ask myself is it easier?

          No, it hasn't gotten easier, I still transcend from denial to anger and if I'm lucky I find a little hope. Every month, every day, I find something new to work through. There are many facets to grief and this type of grief is the stuff nightmare are made of. It's proven to be a difficult balance between mourning my 3 babies, and staying hopeful for future siblings. I expect it to be difficult to realize when we are pregnant again, that it's not Jax Stella or Beck- it's a new baby, a different baby(babies). One that I will get to know in a completely different way, I am scared. 

This is the only kind of mother I know how to be. 
I'm a puzzle with 3 missing pieces.



 The text, the calls, the support, the encouragement, the gifts, the care and just speaking their names... Thank you. 
This is not something to battle in silence and I am so blessed I don't have to! 
Thank you for riding this journey with me and allowing Jax, Stella, and Beck to enter your heart.





Life after Loss...

Tuesday, July 28, 2015

x3


With each day comes a new challenges. 
A new dilemma I have to figure out how to navigate


Like the time between then and now. The time makes them feel further away. & I find way to reel them back in. 

I have to learn ways I can remember them and have them as a part of my life without being on the verge of tears everyday. 

I'm learning to be their mom, relating to moms, even though I only knew them 19 weeks.
This is challenging. 

Having hope for the future and happiness for the present,
Is by far the most delicate and difficult balance. 

The most challenge obstacle is dealing with people who don't understand, or don't care. I like to think everyone cares... How can they not. Truth is to the outside world 3 babies died at 19 weeks, and yes it is sad. But they did not know them, they had no bond, But to me my future died with them. 

The littlest loves of my life are buried under a tree.



I am 26, I've lost my first and only children, I have to live without them for the rest of my life, a constant missing piece. 

Learning how to navigate the never ending announcements of pregnancy and new births.
I take a kick to the gut every.single.time.
It brings me to my knees and have to rebuild myself.

To me my world has stopped. It has died. My passion, my drive, my dreams have died with them. I struggle to find a purpose.  My life has stopped... while everyone else around me keeps moving forward.

 One day I'm sure I'll have it all back but for today I am empty, I am sad, anxious, I'm a shell. 
Old me is gone, new me is trying to figure out who I am.


 IF you haven't walked this you will NEVER come close to the heaviness we carry. 












I am the face of loss.

I was featured on the "Faces of Loss" blog page. 


They are sharing stories to show how common miscarriage, infant and still birth is. 
Showing you are not alone! 
You do not have to be silent.

 It's painful to talk about but with the right people it can be healing, 
and create beautiful friendships. 

Support them by donation that will help produce a new documentary on child loss awareness, and you can also submit your own story.








Held Your Whole Life

Monday, July 20, 2015




I received my Held your Whole Life keepsakes in the mail today.
They were so quick to make and send them out and 
I love the extra touch of the 3 peas in a pod. 


"We exist to give recognition to the babies born in silence when the world wants to say they were not babies since they did not breathe air. We hope that by gifting a keepsake necklace or keychain with your beautiful baby's name on it, you will know that your child counted. We hope that you will find comfort and healing through those of us who have survived, and share your baby’s beautiful name so that we may remember them.

~Asher’s Mommy
Held Your Whole Life, Inc. is a 501c3 Non-Profit Organization"



Having these items helps us to share we hold more in our hearts than you can see.

Jordan's Keychain
My Necklace

I did not have anything with their birthstone so
I made sure to select that as my charm choice.
They added the 3 peas when they found out it was triplets.
Great touch.


They open their form once a month to families wanting a keepsake. 
please share this information with other families you think may benefit.
-they have Facebook and a website-


Donations
are critical for them to continue offering this for free.

All they ask is for families to pay the shipping.


"If you would like to sponsor a Held Your Whole Life piece for another grieving mother, you may do so for a $8 donation per piece. A $40 donation will help us give 5 mother's this small gift to hold close to their heart."

Please consider a donation. 



1 in 4 pregnancies end in loss

& If you are holding a perfectly healthy baby in your arms you are
luckier than you know.
& If you have carried a healthy baby to term you are more
blessed than millions of moms.

Despite their colds and and occasional unfavorable health situations
you still have your child. 

Hold them tight, because you do not know when you may have your last hug.

Surviving 2 months.

Thursday, July 2, 2015



I've survived 2 months.
2 months of them gone.
For 2 months my babies have been in Heaven.


It's sinking in that less than 3 months I would have been holding my 3 babies,
 small, healthy, tiny premies... but with the best odds.
Every hope. Every dream. Gone.


I only had 19 weeks with them. 
I can't remember how they felt like inside me. 
I wish I had enjoyed every moment of pregnancy,
                                     instead I spent those 19 weeks scared. 
Scared of exactly what happened.
I was robbed of my pregnancy, something we wanted so bad.
My excitement and joy was always blended with terror and anxiety. 


I'm so angry.





2 months later... I can tell you it's not 
any easier. 
There are more good days than bad days, 
but the bad are BAD. 
They sneak up and sometimes I can't catch my breath.
Sometimes the pain can last only a few minutes other times it can last a few hours,
 and then other times you're stuck in the cycle for a couple of days
 eventually you make it down the hill.








     -BUT-
I have Hope. Always.
Sometimes I ask "why" why God did you put me through the weeks of hell...hell on my body... hell on my emotions, only to take them anyway.... I have found comfort in knowing, I gave up weeks of my life; weeks of my dignity to meet them as beautiful as they were.

We were Blessed to have met them, 
and to have held them.



-Samone-


 
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