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Showing posts with label still birth. Show all posts
Showing posts with label still birth. Show all posts

Angels among us

Monday, August 17, 2015




This is just a little thank you, because I'll never be able to adequately show the amount of appreciation and gratitude I have for the many people who have reached out. (and continue)
Without you I'm not sure if I would be here.

"Some of my best friends I have never met in person. I know them only through Facebook, But that's ok- Friendship is not about touching the hand of another but rather it is touching their heart and should."



I am lucky enough to be surround by people of all ages, all walks of life that have sat with me, cried with me and talked with.  Have invited me to lunch, who've cooked & brought it to us.
Thank you. To the angels that sent cards and flowers, and to those who just kept us in their prayers.
Thank you. To those who are facing their own loss and found the strength to reach out... Thank you.
I joke I am getting so spoiled by this love... I may not recover.

The gifts given in their memory are my most favorite possessions
Every single one of them I will keep forever. 


Recently, The most incredible woman sent me a personalized gift (there were actually several bundled together).

The amount of time spent making this is absolutely unbelievable. I'm just, I'm speechless, I'm at a loss of words for what she has done for me, for what everyone has done. The most beautiful part- this lovely lady is not a friend that I talk to every day, we don't text, we don't call each other or hang out on the weekends, our paths crossed in high school and we have managed to stay in touch; Mostly by Facebook. But she is a woman who knows... she is one of the most creative and cutest women I have the pleasure of knowing. That is what makes this even more special to me.

She also has 2 young boys of her own that she took time away from to focus on me and mine, and created something just so personalized, and thought out. I was speechless. For weeks she would send me pictures teasing me daily of this beautiful project she was working on.

When I finally received it and held it in my hands I just didn't know what to do first. Tears flowed as I opened the box to everything Jax, Stella, and Beck- More happy tears than sad ones this time! I was overwhelmed. The pictures she has been sending over the past few weeks were a shadow compared to the final product. She did not let me down, she gave me hope, happiness, validation all at once.

I could spent hours reading and focusing the beautiful embellishments and verses. I love that she used some of my favorite quotes and added ones she knew would be appreciated.
In it I received a journaling bible that she has so beautifully started, a note pad for recording and remembering passages, inspiring notes, a handmade mug... it's a box full of art.



I don't need to speak her name because like she said,
"Let them bless you without giving recognition, because Jesus will give them recognition in Heaven and fill their crown with jewels!"





I show you these photos so you can share in the hope and healing I've gained from this. 
All of this giving has shown me that even the smallest gesture can have a HUGE impact... 
at a time when it's needed most.





I CAN NOT SAY IT ENOUGH





"Sometimes there are stormy moments in your life when your friends do more than just walk with you; they become angels that carry you and protect you with their wings."





I am the face of loss.

Tuesday, July 28, 2015

I was featured on the "Faces of Loss" blog page. 


They are sharing stories to show how common miscarriage, infant and still birth is. 
Showing you are not alone! 
You do not have to be silent.

 It's painful to talk about but with the right people it can be healing, 
and create beautiful friendships. 

Support them by donation that will help produce a new documentary on child loss awareness, and you can also submit your own story.








Held Your Whole Life

Monday, July 20, 2015




I received my Held your Whole Life keepsakes in the mail today.
They were so quick to make and send them out and 
I love the extra touch of the 3 peas in a pod. 


"We exist to give recognition to the babies born in silence when the world wants to say they were not babies since they did not breathe air. We hope that by gifting a keepsake necklace or keychain with your beautiful baby's name on it, you will know that your child counted. We hope that you will find comfort and healing through those of us who have survived, and share your baby’s beautiful name so that we may remember them.

~Asher’s Mommy
Held Your Whole Life, Inc. is a 501c3 Non-Profit Organization"



Having these items helps us to share we hold more in our hearts than you can see.

Jordan's Keychain
My Necklace

I did not have anything with their birthstone so
I made sure to select that as my charm choice.
They added the 3 peas when they found out it was triplets.
Great touch.


They open their form once a month to families wanting a keepsake. 
please share this information with other families you think may benefit.
-they have Facebook and a website-


Donations
are critical for them to continue offering this for free.

All they ask is for families to pay the shipping.


"If you would like to sponsor a Held Your Whole Life piece for another grieving mother, you may do so for a $8 donation per piece. A $40 donation will help us give 5 mother's this small gift to hold close to their heart."

Please consider a donation. 



1 in 4 pregnancies end in loss

& If you are holding a perfectly healthy baby in your arms you are
luckier than you know.
& If you have carried a healthy baby to term you are more
blessed than millions of moms.

Despite their colds and and occasional unfavorable health situations
you still have your child. 

Hold them tight, because you do not know when you may have your last hug.

We all have Secrets

Saturday, July 18, 2015





I still reach down and touch my stomach...
 Even thought it's empty I will never forget it was their home.

I still pin to their board on Pinterest.
I won't delete it, the type of "pins" have just changed... 

I look at their photos a few times a week, the only photos 
I'll ever have of them. I refresh my memory of their faces.

The videos too(I'm so grateful for recording the last sonogram I would have.)
Stella was being a Diva. I loved it.

I visit them once a day. I talk to them.

I say their names out loud to myself.
Over and over. 
Different orders Beck Jax Stella. Stella Beck Jax. Jax Stella Beck. 

I want to talk about them, all the time. So you can ask...

I search for everything in 3's.

When I see butterflies or cardinals I think of them. 

I am overwhelmed with envy with I hear a couple has healthy triplets, or higher multiples. 

I feel sick to my stomach when I see someone decorating a nursery in the same colors and patterns...

Yes, I sleep with their bears.



           I wrote a book about them for their future siblings.








I want to say THANK YOU to the moms that wanted to shared their "secrets".
 I hope this can be a looking glasses into our world. Our struggles and fears. 
I hope that this will help you be patient with us. 
Know that this is a life long journey and does not simply disappear after a few years... 
or even after another child.
Some of us may never heal, but we hope to find peace.


" "I dress my bear in her clothes"
"I swear I feel "phantom kicks" Just like when I was pregnant with her"
"I don't want to lose my tummy because I associate it with her [Ella Kate]"

"I have even gone as far as taking their [Cadyn Joseph, Adalyn Grace, Mikayla Michelle] shadow boxes off the wall and bringing them to the basement with me during tornado warnings"

"Four years out and my heart still secretly aches when I have tater tots or chocolate peanut butter milkshakes because those were the foods I craved when I was carrying my boys, Thomas & Nicholas. "


"Its been close to 12 years since my loss and I still think of them [Sydney & Sienna] every time I see a butterfly "

     "That I wish it was me who went and not them [Emma Lee, Chase David]."

"I secretly panic when I hear "boy girl twins""

"I feel sad when someone names their child their names, Jude or Brinly"





What no one tells you...
 Is the bond you have even after they are gone.
 They are not here, and will never return, 
but you hope to feel them around you. 




Return to Zero

Monday, July 13, 2015




Return to Zero is a film, based on a true story.
(bereaved parent's print out is available below it follows along with the movie.)

Last scene in film {return to zero}.

            My story and Return to Zero are different, 
but the emptiness of loss and overwhelming grief all parents, 
moms, feel after this tragedy is similar.  
No loss is the same, no journey is the same and no grief is the same.


You will find, if you have traveled the journey you will share the same thoughts, comments, experiences with so many others that have walked this before you, with you, and will walk this after you. 



"You know what's strange, this pain I feel... I love it. I LOVE it. And I embrace it. I'm afraid if I let it go, I'm going to lose the last little piece if him I still have. It's funny, this thing no one tells you about... about the relationship that begins with them after they die. If I can quiet my head down enough I can feel him... I can hear him."


THIS!
I didn't write it, it's taken from the movie, but it's the EXACT emotion I feel often.


However different our losses are I've notice the same feelings over and over.
The same quotes, same emotions... 

Guilt
  • For not being able to prevent what was out of our control for the most part.
  • For laughing, or finding happiness again.
  • For wanting more children.
  • For thinking we did something, ate something, drank something, something from our past...


Anger- This one explains itself.
  • (lets be honest) We are mad that the drugged up hooker gets a baby...
  • the 16 year old who has no clue.
  • the one who doesn't want children and it "just happened".
  • the one who aborts.
  • and so on... we are angry at everyone. Sorry.


Regret
  • Not demanding the doctor to check and re check.
  • Not following our instincts, and trusting our doctors know it "all". (even with the best drs we will always wonder)
  • Doing "too" much, Not going on Bed rest early enough.
  • Should we have ran more test.
  • Not knowing to ask the questions we didn't even know needed to be asked.


We realize most of this is out of our control, but it doesn't matter. 
We just wish we could go back and do more.
We will never stop asking,
Did we do enough? 
What if?


The same articles are passed around through support groups and support pages. 
When we finally hear the words that reflect our exact feelings we cling to them. 
We shout "I am not CRAZY!" "Someone else feels exactly the way I do."


Validation that our fears, thoughts and feelings are not just our own!
"The sense of understanding and belonging is invaluable 
and incredibly healing." 

You are not alone. 



HERE is a guide for bereaved parents 
(given by the "Return to Zero" site.)


Is Ignorance bliss?

Wednesday, July 8, 2015



Would Not knowing what it's like to be their mom make my life "easier"?

Not having known my children would mean I wouldn't miss them every second of every day.

 I wouldn't have to look into the future and realize they will [forever] be missing. 
Missing from family photos... Holidays... Birthdays...

I wouldn't have to face the fact I'll never see any of their milestones. First steps, words, graduation, weddings. 
Big or small.

I wouldn't have my heart shatter at the silence that should be full of their cries and laughter. 

The words "I love you mommy" wouldn't be missed and longed for. 

I wouldn't be suffocating in tears every time I realize this is real, they are not coming back, I can't wake up, I don't have a second chance. 

I wouldn't have to feel the heartache, have reason for the gallons of tears, I wouldn't have puffy eyes and dark circles, & I wouldn't be a mess.

I would be blissfully ignorant. 



Pregnancy did not happen easy for us.
It took years, it took praying, it took crying and begging.
Then, like a miracle, my cries were heard, prayers answered and the wait was over.
Then overnight gone. 

Is ignorance bliss? 

No.
 As painful as every second and everyday will be, no matter how many tears I cry and no matter how many children I go on to have.  They are my unique gift not many get. 
They are apart of my story and, they are, my favorite chapter and also my most tragic.  
I will talk about them, celebrate them, cry about them.
I can't see them but if I quiet my aching heart I may feel them.



“The risk of love is loss, and the price of loss is grief.
But the pain of grief is only a 
shadow when compared 
with the pain of never risking love.” 
- Hilary Stanton Zunin 

For better, for worse and the unimaginable.

Saturday, June 20, 2015



Our lives, marriage, and relationship is changed forever after the loss of our children.


My love for Jordan has grown in a way I can't even comprehend. 

Our journey has shown me traits in him that were there all along I was just too selfish to see. During our multiple stays in the hospital I was able to see just how much love and care he has for me. 

When I was in too much pain to ask for help or trying to be brave and in denial of what was happening he called for help, and made them contact our doctors. 
When I was suffering, the pain too much to bare, he was my voice screaming for pain medication to help me.

When I was lying there hooked up to blood, during my transfusions, vitals all over the place-  as soon as the bag would be empty, before the machine would beep to alert the nurse, he was already out there making sure they had more ready. 

{I got to witness how much he loves me, how well he can take of me, 
how hard he would fight for me.}

My life, my love will never be the same.
Our love is rare, it is special, and is unique. Some think they may have this kind of magic... but when you can feel it in times like this it's an extraordinary feeling. The feeling never really goes away once you experience it. I can't imagine living life without him. 
There is no one else I would want to go through this with. 

{He is so gentle and sensitive to my moods and feelings. 
Always concerned about me and my happiness.}

I only hope he knows I would have done the same for him.
Instead of being torn apart we have been brought together. 
Jax, Stella, and Beck changed us and TIED
 us together in ways like never before...
We are happy, optimistic and more in love than I could have ever thought possible.
Our babies came into our lives and left it far more satisfied. 
They are our light.

-Samone-


One month...

Tuesday, June 2, 2015








Month 1 of the rest of my life without them.




I heard that you never 
:get over the loss: or :move on:
 -you learn how to survive it.
How am I? Surviving!

I am still hoping I am going to wake up...


The past 4 days have been shockingly rough... 
Last Tuesday we were back from vacation and I was in good spirits- 
motivated, smiling, optimistic- it all went down hill from there...
the rest of the week I was tired, sluggish, uninterested in anything. My follow up appt. was approaching and I think I was dreading the possibility of resurfaced feelings- 
that were already still so fresh, 
and to be back there seemed unreal.

                                                

I had my follow up with my doctor on Monday (yesterday). The pain of walking into that office, no longer pregnant, and there for a very different reason triggered tears, disappointment, anger and worry. I was having anxiety the day and night before...I was stuck replaying the slide show of the past 5 months over and over. I wondered what would we discuss, how would we interact, would it be awkward, or comfortable.

It's similar to the night before their memorial. The build up was worst than the actual day. The gash you've tried to seal up gets ripped open-and you have to start over. You prepared for the worse. Your feelings, crying in front of people (which can quickly make them uncomfortable and confused on how to help). I me not knowing how to respond to the typical- I'm sorry-.

During the visit my Doctor, who I feel is more of a friend than my doctor, talked about them, talked about the birth, what I remember and what I don't, he mentioned it being a small miricale I went into shock when I did. An event like that is something you won't want to have to remember. We talked about how I was doing,
 Jordan and I's relationship. 
(Statistics are sadly high for divorce after loss of a child)  
and then we got to talk about our future plans. 
Of course tears flowed a few times and but it turned out to be a relief, and very comforting. There are fears and questions, but there is hope. 

After the appt. I went to lunch with my mom, who attended the appt with me, it made this day a lot better than it could have turned out! It's been good to have the company of others to distract, comfort and share laughter. 
People that understand. That feel what you feel. 
Some days I just can't leave the house, but the times I do I mostly enjoy myself. I get overwhelmed quickly and easily triggered, but you can't allow yourself to get stuck in your comfort zone. If I allow myself too much time alone thinking... I start to spiral into sadness and what-ifs.



 I love my story. As much as I feel defeated some days, devastated... like I can't go on- I am proud of this life. I might not have my perfect ending, but this is only one chapter in my book. Probably my favorite chapter, and I would never rewrite it or delete it.
 I love them and they are mine. 
Always a part of me.




I decorated Jax, Stella and Beck's grave.
I am so grateful to have them close by.

I drove to Dallas to take care of plans for a future dedication to my babies.
It went perfectly and I am SO looking forward to the next step in healing.

Yesterday was surprisingly OK and so was today. 
I am currently content. 

-Samone-

TRIPLETS, High Order multiples STATS

Monday, June 1, 2015




Most people do not know or understand the risk involved with twins, triplets and other high order multiples...  It's not all rainbows and butterflies. The families you see on TV are the RARE except to the rules... they are not the rule. They may have had access to extremely technologically advanced facilities, or doctors that have done this a million times. 
Even with all that on your side... failure could be just right around the corner.


Even a singleton pregnancy has many risk. 
Lets multiply those risk x3.
Having major risk makes you look at others peoples pregnancies with a different view. You will never appreciate your perfectly healthy pregnancy-Until the unthinkable happens to you, you will never see how lucky you are. Your morning sickness you complain about is nothing. Your back pains are nothing. Your headaches, your extra weight, how huge you are... all your complaints are nothing. Keep in mind all the woman who can not get pregnant, struggling to get pregnant or can not stay pregnant next time you decide to complain about one of your petty problems.
When your 40 weeks pregnant complaining you want the baby out...
Instead be grateful.

{back to multiples}

Be prepared. 
The entire time I had a "feeling" this was too good to be true. 
{some think we were crazy to be having triplets,
 It wasn't chosen... it was given to us.}
 I tried so hard to be excited and stay positive. I really did not want to purchase anything until after 26 weeks (even then they babies would face many weeks in the NICU and struggle .. but they had a chance). I was very stand offish when I would talk about "what we needed". I tried not to buy too much stuff, tried not to talk to much about how excited we were. Everything was going well, growing, I was healthy, strong heartbeats...I had no reason to be worried... until the past month. My body started to fail me.
When you carry multiples you grow much faster, meaning there is more weight pressing down much earlier than a singleton pregnancy.    

My feeling was right and devastation is an understatement. 

_______________________________________________
THE FACTS:

Although there are many joys for these families, far less well know are the higher risks for the mothers and babies. Prematurity and low birth weight are the main reason for increased mortality and disability for these children. 
Sadly, much of these pregnancies involve losing one or all babies, or caring for one or more children with cerebral palsy and other health and developmental problems.  


Complications:

Preterm Birth

Preterm labor and birth pose the greatest risk to a multiple pregnancy. Sixty percent of multiples are born prematurely (<37 weeks) compared to about 10% of singleton pregnancies. Feasibility of a vaginal delivery depends on the size, position, and health of the infants, as well as the size and shape of the mother’s pelvic bones. Cesarean section is often needed for twin pregnancies and is expected for delivery of triplets.

The chance of preterm delivery at 24 to 32 weeks is about one per cent in singleton pregnancies, five per cent in twins, 20 per cent in triplets and 10 per cent in triplets reduced to twins.

"Selective" REDUCTION:

Lets talk abut the fact you are asked to basically abort some of your babies. You are encourage out of the best interest for yourself and your pregnancy to reduce down to either singleton or twins.
I refused, and absolutely have no regrets. It was all or nothing...
In the management of multifetal pregnancies there are three options: 
  • Continuing with the whole pregnancy 
  • Termination of the whole pregnancy 
  • Embryo reduction to twins

Maternal Complications:
  • postpartum hemorrhage
  • preeclampsia 
  • HELLP (hemolysis, elevated liver enzymes, and low platelets) syndrome
  • intraventricular hemorrhage
  •  The perinatal mortality was 41 per 1000. (Death few weeks before or after birth)
I was shocked by that number...

________________________________________________________________________________________________



This is only a small glimpse of what we deal with, what we face and what we agree to when we embark on such an emotional journey.
{There is lifelong heart break and lifelong suffering which is so often underestimated or forgotten by professionals and the public.}



I don't know why we were chosen for this pain and others are not. 
That is the one question I keep asking. Some woman can have 2,3,4,5,6 babies, ok even 8- at one time. Why could I not carry mine?
I should stop asking because I'll never know... and what benefit would it be to me if I did get my answer. 
I can not change what has already happen.  
-and that is the key.



-Samone-

They Live in me

Friday, May 29, 2015



*Mind Blown*

I recently learned that Fetal cells can remain in mothers for years or decades after birth.
In fact, As far as we know these cell will multiply and divide for many decades, 
perhaps even forever!  
This is Called Microchimerism-
This occurs during pregnancy when cells from a fetus pass through the placenta 
and establish cell families within the mother.

Whoa. Pretty powerful.

A baby photo may melt your heart, but far more significant, in some cases these fetal cells have shown to improve health for moms and repair the blood.
 Studies have shown fetal cells can actually flock to the site of stroke damage. 
Incredible.


________________________________________________________________________________

Read for yourself the facts and a beautiful story:




_____________________________________________________________

Today I really needed to find a sign.
I'd say I think I did!

{"You live on in them, and they live on in you"}

My buddies from beginning till the end. 

So every single "type" of mother...
Let us all be comforted by the fact
They are literally a part of you, swimming around inside of you.




-Samone-
 
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